Weddings and Funerals; Life and Death

How is it that something written so many hundreds (okay, thousands) of years ago can say it best of all... (Ecclesiastes, chapter 3)

There is a time for everything,

and a season for every activity under heaven:

a time to be born and a time to die,

a time to plant and a time to uproot,

a time to kill and a time to heal,

a time to tear down and a time to build,

a time to weep and a time to laugh,

a time to mourn and a time to dance,

a time to scatter stones and a time to gather them,

a time to embrace and a time to refrain,

a time to search and a time to give up,

a time to keep and a time to throw away,

a time to tear and a time to mend,

a time to be silent and a time to speak,

a time to love and a time to hate,

a time for war and a time for peace.

And so it is as I read this, that I am reminded that everything is indeed beyond my control and everything has its place in time.

Though I try and tear down walls and mend fences and stop wars, I cannot do all of these things. Though I try desperately to only love and only heal and only grow, I cannot do and feel and be without doing and feeling and being all of the rest.

There are some of these though, that are more difficult to feel.

It is difficult to hate.

I remember after Grace died, literally, hating, absolutely hating babies.

And the first time I saw one and the thought crossed my mind, "I hate you," I was horrified. How can a person hate a baby? It was probably one of the lowest, darkest moments of my life.

It is difficult to be uprooted.

I was uprooted this week. Upended. And there was not a damn thing I could do about it. Out of my control again. I am waiting to be planted. I am waiting again to bloom. I am waiting to sprout.

But in the meantime, I am tearing down; I am scattering stones; I am searching; I am silent; I am mourning that which can never be.

There is a time, indeed, for weddings and funerals, for life and death, for love and war. And it is good to be reminded of these things. Even those of us with the best intentions and the best hope, can feel despondent.

I no longer hate babies. I get pleasure out of holding them. Though if you had told me I would find pleasure in babies nearly seven years ago, I might have torn out your eyes. Rage, envy, lust was at the heart of all of my emotions then. Feelings foreign to me. Feelings that made me uncertain of where to turn, who to trust, where to go.

And I see that look now in the eyes of a newly bereaved parent. It doesn't take much to remember, to go back, to sit with them. It is in this time and in this season where I am most fully alive, where I am blessed. There is nothing more sacred and holy than being in communion with a parent who has just lost a child. To sit. To watch. To wonder.

I am blessed indeed. Even in times of absolute despondency and hopelessness, hope prevails.

It is in these seasons of life that I most recall the seasons of death.

And in these moments, I am alive. I am alive. I am alive.

The Second Coming

Sometimes, no matter how hard you try to protect yourself, the centre cannot hold.

Sometimes, no matter how hard you try to protect yourself, things fall apart.

Sometimes, no matter how hard you try to protect yourself, the best lack all conviction.

Sometimes, it is just one of those weeks.
Exhaustion sets in.
Grief takes hold.
Unexplained emotions rise to the surface and there is no stopping them.

World War I poets like Yeats must have felt as if the world was spinning out of control with no end in sight. Perhaps they really did think This is it! Rupert Brooke and Wilfred Owen felt the same way. These war poets wouldn't know about WWII yet. Would never find out about Vietnam, Korea, Persian Gulf wars.

But they all share something in common. They know the trauma of loss first hand from being in the battlefield. They know the trauma first hand from the horror of those moments, the sound of the guns, the cracking of the bombs, the acrid smell of burning bodies.

It doesn't take 100 bodies to become overwhelmed. It doesn't take guns and ammunition and bombs dropped from above.

One child.

One child dead at birth.
One child dead before birth.
One child ripped from your arms.

And you remember the sound of the monitor and your own heart beating while the other one lies silent. You remember the sound the wheels made on the ultrasound machine wheeled in the room to have 'one quick look to see what's going on.' You remember the metallic taste in your mouth when all moisture suddenly disappeared and your jaw clicked together when you tried to talk but no words came out. You remember the way the room became cold, frigid really as you started shivering uncontrollable unable to regulate your body heat. You remember the sound of the bomb being dropped, "I'm sorry, your baby is dead." and the silence that hangs in the air. You remember thinking you never knew silence could be so deafening that you needed to cover your ears to make it go away.

You remember.
You remember.
You remember.

This has been a week filled with hope and wanting. It has been a week filled with disappointment and sadness. It has been a week, a full week, of the full emotional range.

I have met two more this week, two more babies no longer with us. Two more babies whose mothers fall to pieces when they talk. And I continued to be amazed at the courage of these parents, at the love, at their genuine hopelessness and hopefulness. I continue to be amazed.

My own life spins somewhat chaotically this week. Unpredictably.

So much so that I question so much about the direction of my life at the moment, but on some level, I have to trust in the fact that things will continue to present themselves to me, things will continue to make sense at some point, things will continue to improve.

I am not without wanting, longing, desire.

While I was convinced at one time in my life, that longing was just folly, I am more convinced now that longing is a part of who I am--constructing its path for me, teaching me patience, laying down its gifts.

It is difficult though, in a week like this to see that far ahead into the future. It is difficult to understand the implications.

The darkness drops again.

And still, I hope, I wonder, I wait.

I long.

On the bittersweet side of what I know for sure

In Oprah's famous words, "Here's what I know for sure:"

That my father died too soon.
That my daughter died too soon.
That when I wake up in the morning, I will be older than my father ever got a chance to become.
I made it through my 42nd year. Always with my father on my mind, in the back of my head, wondering, thinking, realizing that his life was too, too short.
That time doesn't heal all wounds, and I still miss him.
That time will always be too long without my father and daughter and too short with my husband and living children.
That no matter how hard I try, I will never fully understand why some of us live longer than our own children.
That the pain, when it arrives in those unexpected moments, continues to surprise and confound me.
That love really does transcend death.
That hearts really do literally crack.
That I will always miss having a father.
That turning 43 surprises me because I thought I'd breath a sigh of relief, and instead I am surprised by the overwhelming sadness of the fact that my father never made it this far.
That for so many years his death was about what I had lost, but now it is about what he has lost.
That I wish I knew more about him.
That I wish I could have said goodbye to Grace before she died.
That I wish I could have said goodbye to my dad before he died.


That there is never, ever enough time with the people you love.
That therapy has saved my life.
That I haven't always wanted my life to be saved.
That cracked hearts can be repaired though they are always fragile, and if you look closely, you can see the hairline fracture.
That I will always wonder what he sounded like, smelled like, and looked like.
That I wonder what of him I carry in me.
That I wish sometimes that things could have been different.
That I really am grateful for the person I've become, and so much of who I am is because of who Grace and my father were.
That death in all its mystery will be what I think about my whole life.
That thinking about death isn't a bad thing.
That all my pain, all my hurt, all my sorrow stems from love.
That I will turn 43.
That I am lucky to be alive.
That luck really has nothing to do with it.
That someday I will not have so many questions.
That I fear the very thing that will save me.
That love will save me.
That love terrifies and excites me.
That I am, in the words of Joanne Cacciatore, still becoming.
That my father died too soon.
That my daughter died too soon.

Too soon.

I am ...

New Death

This week, I met three new babies who died. And that is the beauty in the sadness. I get to meet these babies who don't get to be with us. Not necessarily in a physical sense. Most of the time not. But I get to talk to their mothers, their grandmothers, the friends. I get to hear about their loveliness. I get to sit in the company of the bereaved and listen.

It is not about me. It is not about my agenda. It is about listening and watching and breathing in.

It is about love.

It is about an overwhelming need to feel and be loved and to have to endure the excruciating pain of saying goodbye. It is about being present.

It is about unfairness.

It is about the desire to throw yourself on the ground kicking and screaming.

It is about love.

It is about needing someone to listen to you so that you can try and make them understand that this baby held all your hopes and dreams. This baby was your future. This baby was everything. And now the future has disappeared.

In all of the pain of these stories, I have to keep coming back.

Why?

Because it is a calling. Because I remember for the rest of my life the fear, the isolation, the overwhelming loneliness, and I remember the one mother who stepped into my hospital room and said, "It happened to me."

And I remember thinking that there she was: Standing.
There she was: Looking whole.
There she was. Fully present.

And out of the amazing kindness of her soul, she shared photographs of her child with me. She shared memories. And she cried with me.

And that is one of the kindest, most loving things I remember about that time.

This happened to someone else.

And she survived. Maybe, just maybe I will survive.

And so I go to be with the bereaved. To sit in their presence. To hold their hands. To listen on the telephone. To exchange email messages.

And there is some small or perhaps large miracle that occurs. Because they do survive. We survive.

We don't always believe that we will survive, but we do.

We don't always even want to hear that we will survive because at times the probability of living hardly seems like a glimmer of hope at all.

But...but...And yet.

Love is at the heart of survival. And taking one step at a time is part of the process.

It is like that silly, fuzzy white monster in the Christmas movie who puts one foot in front of the other. And soon you'll be walking across the floor.

Three babies. One week.

Amazing love.

That is where Grace lies. Between the love and the grief. Between the sadness and the joy. Between the hope and the fear. Between the confusion and the noise. Between the rage and the isolation. Between the silence and the music.

Between and betwixt.
Above and below.
Beside and behind.

Love in all its complicated forms.

Grace.

Anger, Fear, Isolation

I spoke with a mother this weekend who is angry. Very, very angry. Her baby died, and she doesn't know why. Neither do the doctors. She just died. And she's angry. And hurt. And sad. And confused. And tired. And then the anger, it starts all over again. Sometimes turns to rage.

I know immediately what that rage feels like. I remember it in my bones.

Only, as she tells me, she's a woman. What in the world is she supposed to do with her anger?

A good question.

Since I was a child, I have been taught how to suppress anger, and I bet I'm not the only one. If I threw a fit, I was sent to my room. If I got mad and stomped around, I was sent to my room. If I kicked and screamed, I was out of control. If I threw a tantrum, I was spastic.

Where then was anger supposed to reside inside of my body?

Nowhere.

I learned that very quickly.

The only problem is, it didn't actually go away. It built up. It boiled, it bubbled, until one day, on the day my baby died, the anger started to seep out.

So, you might think when it overflowed, I screamed and cried and raged, but oddly, I sat silent most of the first day--confused by the people around me, oblivious to the fact that I was angry, at least in that early confusion of shock and anger.

My baby was dead. That was what kept going over and over inside of my head. There is a dead baby inside my body. There is a dead baby inside my body.

That tape played continuously. Remember as a child when your brother or your friend said something you didn't want to hear and you covered up your ears and sang, la, la, la, la, la. I can't hear you! Make it go away.



That's pretty much what happened. I shut down and the tape kept going over and over again and again. Dead baby. Dead baby. Dead baby.

And then, slowly, over a great deal of time, the reality of it set in and after the delivery, after the people had gone home, after the arrangements for the body were made, after the abundant casseroles were put into the freezer, after the milk let down, after the bleeding stopped, that is when the anger appeared.

The anger brought fear along with it. The anger stood up and introduced confusion. The anger came and threw a party for isolation. The anger snickered and taunted and teased until my body grew weary and gave in and just exploded in all the right and wrong ways.

And as I learned to express my anger, a strange thing happened. It started to lose power over me. I started to feel stronger. I was the mother bear who though she couldn't protect her cub, could protect the identity of her cub and shout from the top of the mountain, "Grace matters."

Anger is as valid and appropriate as sadness, as joyfulness, as love. Anger and fear and hope and exultant feelings all reside inside of our bodies.

I am so sorry that your baby died, I said to this mother. I wish I could tell you something else. I wish that you didn't have to talk to me about this horrible, tragic, life-changing, forever event, I continued.

But I will stay on this journey with you. And it will not always be pretty, and it will not always be so raw either. This anger is love. This sadness is love. And it is all good in its own tragic, painful loving way.

Love then is anger and fear and loneliness. Love is tossing rocks into the river, breaking dishes on the ground, spilling a glass and throwing it against a wall. Love is stomping your feet and flailing on the ground and screaming out loud: I want my baby; I want my baby; I want my baby.

"Everytime a child says, 'I don't believe in fairies,' there's a little fairy somewhere that falls down dead."

Rarely do I find myself to be superstitious, to believe in superstition. But when it comes to death, I find myself highly suspect to never again put myself in a position of challenging whether or not superstition can play a part in it.

And so in these last few weeks before I turn 43, before I become older than my father ever had a chance to be, I find myself not walking past black cats, never walking under a ladder, tossing salt over my shoulder. I find myself holding my breath.

Was Grace's death my punishment for thoughts and feelings from long ago? I know on a conscious level of course, that kind of thinking can be the undoing of me. That kind of thinking is counterproductive and counter to all things that I believe. But... Still... Nonetheless...

Did you ever find yourself playing hooky from school or work? Calling in sick one day just because you could. But then somehow, mysteriously, one or two days later, you actually become sick? It's happened to me on more than one occasion. Certainly then, the thought flicked across my brain: Is this then my punishment?

I don't pretend to be an expert on theology, but I grew up in a home where theology seemed pretty black and white, right and wrong. The trouble with that kind of theology is that the answers are often too clear in times where murkiness begs to be seen, where black and white becomes lines of polarization.

Where do our superstitious come from because part of me does still believe in fairies. Part of me does believe when those words are spoken out loud, "I don't believe in fairies," one indeed will drop dead.

Early in my pregnancy with Grace, I felt a divine kind of presence, a real kind of faith in the fact weeks before it could even be confirmed. And with that divine confidence, I walked around playing with fire. I walked around convinced that this was a pregnancy that was meant to be, that this was a pregnancy for which I could by pass most testing, most routine checks, most standard procedures because I had the certainty that everything was going to be just fine. I was certain that no fairies, thank you very much, would be dropping dead on me.

And still, still, there is another part of me that will tell you there was a tugging all along. That there was a voice far behind the recesses of my mind preparing me for the worst. Don't nest too much. Don't freeze too many casseroles. Don't buy too many baby items. And I listened to that voice and I didn't buy anything. I didn't freeze anything. I didn't prepare anything.

But I did call in sick even when I wasn't. I tested the waters. I ate a few slices of unpasteurized cheese. I even drank an occasional glass of red wine. I felt pretty invincible until the unspeakable actually happened, until I tried to take it all back. Until I saw the eyes of the technician when she looked away.

Just tell me my father was dying. That's all I want. I want the truth of the situation when it was happening. I don't want the faith in miracles, the faith in sparing what can't be spared. Just leave me a note, write me a letter and tell me you won't be at my wedding. Tell me you won't live to see your grandchildren. Tell me you won't live to see me turn 43 let alone your own self.

Just call death what it is and don't sugar-coat it with other statements.

I don't know if fairies really fall down dead or not, but I sure as hell know people do: parents do, children do. And don't pretend anything else because the murkiness in all of that? That kind of murkiness creates the most confusion, the most havoc that can stick around for a long, long time.

I do still believe in fairies. I have to. Because if I remove the rabbit hole, if I take away the fairy rings, if I give up believing in magic then everything else at times can seem pretty hopeless. Faith exists without seeing. Hope exists because faith is present, because the magic and wonder of the world holds so much potential. And if believing in fairies provides even one child with a magical moment, who I am to be the one to take that away. Who I am to challenge that which cannot be seen?

Out of my control

Sometimes, the world just decides to spin on it's own axis and forgets to ask me permission for changing plans. The thing is, when this happens, the world also forgets to warn me ahead of time so that I can give permission to the universe for the plans to change. I find this extremely annoying, irritating, and well, unpleasant.

That happened this week when certain plans, things that were going to occur and perhaps affect my life in big and not so big ways, were changed. Not just changed actually, but canceled. Splat.

I know I'm being vague. Purposely so.

The point has less to do about the actually plan being altered this week as it does about the idea of control, or lack thereof. I can actually control very little in my life and in the lives of others.

For a long while after Grace died, our lives spun out of control in a direction that had me constantly questioning everything I did. And as I desperately tried to cling to finding purpose again in my own life, I found myself for a short while, completely letting go. Not giving up necessarily, but letting go of any and all expectations. There was a certain freedom in that to be sure.

But as the years have passed, as time in it's own cliched version of life, marches forward, my hold on control has slowly returned. There are things about this I definitely like, and things about this that I abhor.

Four years ago, if you had met me, I'd tell you that I am a very different person than I was BG (before Grace). In fact, if you'd be interested in entering my life, I'd have to vet you first to see if you could handle my grief, the person I felt like being on any given day. And there were those people I knew BG that had to pass certain tests in order to stick around. The most crucial test simply being: Can you understand that my grief is raw, present and unpredictable?

And I developed a laissez faire approach to things, that is, I didn't really give a damn about what happened when it happened. In other words, I gave up most control.

Interestingly, little affected me, but I also found myself mildly distant from caring about a lot of things. In other words, my passions disappeared, my control, or lack thereof, left me in a free-fall kind of way of living.

I thought this was my new choice.

Turns out, though, that some level of control in a person's life is in fact a good thing. Some things, however minor, are good to control.

But this also means that vulnerability creeps in again.

So here I am watching things spin out of control and trying to decide what in fact I should try and reign in, try to control and what I should just let go of.

These things are not always necessarily easy to figure you.

What a granddaughter and a grandfather can share

They are both here in front of me: two photographs. One of a daughter dead at birth. One of a father who died after a four year struggle with cancer. I can barely remember either one without the aid of a photograph. Of course, I can remember Grace and her small body, her three pound, 15 ounce self. But what I actually remember of her is rather hazy because I didn't realize then that I could have asked for more time. I didn't realize that instead of the three hours and 48 minutes I got with her could have stretched into another day. Instead, I took in what I could. The closed eyes, the dark lips, the furrowed forehead.

But now it really is rather hazy without the photograph in front of me.

And my father? Nothing. I remember nothing. I see the black and white photo in front of me, and it is as if I see a stranger. I see him holding my brother on his lap, me on my mother's lap, the other two off to the side. But no amount of staring at him can bring him any closer. No amount of looking in his eyes reflects back anything more than stories I have been told by others.

I see him in my mind, kneeling on the grass in our front yard with my brother, Jason while I remain inside of my mother's belly. I can envision the prayer my brother has told me about, when my father, joined by my brother, kneels down and prays for a daughter. I wonder if it was morning or night. I wonder if the grass was wet with dew. I wonder how fervently my brother actually prayed with him.

I see this image too as a photograph told to me several times as if the telling of it makes it real.

Are they real? My father and my daughter? For they were born, one living and breathing, one not. Set next to one another I suppose you could say my father got the longer life, the 42 years set against the other, 32 weeks inside of a body seems quite long.

But neither was long enough for me. With each of them, I cannot say that I had enough time with either one. I can say easily that I feel greedy. That I want more. That I want enough time with each of them to feel satiated.

I want one sitting with the other--granddaughter in grandfather's lap.

I want to call my father when conversations with my mother don't go so well.

I want to call my father when conversations with my husband don't go so well.

I want to call my father to tell him about my day, and I want to ask him for answers to questions that I just can't seem to answer.

I want to call my father and tell him, hopefully retired by now, to fly up to visit, to come up and fix the moulding around the refrigerator that we don't have time to fix. I want to ask him to patch the ceiling where the water has dripped for a couple of weeks now. I want to ask him to stay with the children while Terry and I go out on a much-needed and much overdue date.

And I want him here to teach me how to grieve. To tell me what it was like to lose his own father as a child, and how he found ways to cope. I want him here to teach me how to grieve.

As a minister, he would have seen and performed enough funerals by now to have a sense of what works and what doesn't. He would be able to comfort me with words and laughter, and I want to believe all of this with the desperate faith of a child toward her father. I want to believe that whatever words I would have cast out toward him in anger as a teenager would long ago have dissolved. I want to believe that I would have lived up to his prayer in the grass on that long, long ago day when his prayers rose up to sky and were met with answers that all of us found pleasing.

I want my prayers to be answered as easily as his: Yes, yes, you can have your daughter. Here she is.

And you, you can have your father for as long as you want.

I want my prayers answered as positively as his were on that day.

I want. I long. And I continue to feel terribly greedy toward all of these things that I wish for.

Granddaughter set atop of grandfather. Is that really too much to wish for?

Maybe, just maybe, with my childlike wonder and candy-coated faith, granddaughter really does sit with grandfather and time no doubt will pass too quickly until all of us are together again and some of my questions will finally be answered.

Grief arrives in the quiet passing of a year

42. I have been 42 for more than seven months now. But as those seven months end and as I move closer and closer toward 43, I cannot help but think about my mortality. I cannot help but think that 42 years is how long my own father got. That's it. That's all.

And with his death, came the journey of my life at five years of age, learning again how to live, learning to live without him, not understanding the meaning of his death in that moment. And experiencing it again for the first time, 31 years later when my own child died and knowing finally how permanent death is.

42 years. Leaving behind a wife, a 13-year old son, an 11-year-old son, a 9-year-old son, and a 5-year-old daughter. And that is how I have always seen it. Until now.

And now, I see a life left still living. Leaving at 42 is leaving behind your own life, leaving behind your joys and sorrows. Leaving behind all of those things you imagined on the days that your children were born. Leaving behind their weddings and births of your grandchildren; leaving behind the death of your parents; leaving behind your daughter's high school graduation; leaving behind yours sons' marriages to their wives. Never knowing what it means to hold a grandchild in your arms; never being able to console your daughter when she grieves. Never being there to mediate an argument; to hold your wife again in your arms; never being able to sit again with your six-year-old, now seven and eight-year-old. Never taking your grandchildren out for an ice cream cone; never seeing the joy on their faces as they tear into their gifts on Christmas morning.

And at 42 with all three children on the couch, sharing a bowl of popcorn while watching a movie, I feel the inexplicable grief at being unable to call my father to tell him about this moment. I feel the grief of a daughter who for so many years has known the emptiness at losing a parent unaware that this emptiness was so much less even than the emptiness of losing a daughter and how is that even possible? How is it possible to sit one emptiness next to another and compare it? It really is no more or less, but together that emptiness is huge. That emptiness and longing feels like an open wound that sometimes closes and heals, but most of the time remains raw and exposed only pretending to be something other than it really is.

It is at best bearable and at worst excruciating. It is a kind of love so large that it tears open the heart and literally pauses the breath and closes the throat. It is a kind of longing so huge that words seem like empty placeholders filling up a page with mindless letter after letter, word after word creating nothing more than its own kind of void filled with nothing more than words on a page.

42. It is a kind of grief all on its own to live through this year. To make it to 43. A birthday that can only be bittersweet in the passing of it because living through this year cannot be a kind of celebration, it cannot be a joy worth celebrating. But it can be a life worth remembering. It is the closest I can get to being nearer to my father.

A father who for me is merely a series of photographs and told stories. A father whose face I cannot even conjure up without the help of a photograph. A father who I've been told from story after story after story that I was loved and wanted and wished for and prayed for. And to that again I say sometimes it feels like empty words on a page because nothing, nothing can bring him back into view for me. And with all the cells of my being I want nothing more than my father here sitting on the couch with my children and with a six year old sitting on his lap in the form of my other daughter, also missing.

And that is the kind of longing that never leaves. That is the kind of longing that stays behind no matter what joys come along. It is, in fact, that longing that sometimes makes the joy even sweeter, the heart sing louder, the love feel bigger than anything any words can ever describe.

The pain of those first holidays

There are many families who, for the first time this year, are experiencing the holidays without their children. They sit around the Thanksgiving table with their families, dreading those words from loved ones, "What are you thankful for this year?"

I remember our first. We neither wanted to give thanks nor did we feel like we had anything to give. I was empty, both physically and spiritually. I had nothing to give, nothing to celebrate. It was a dark year. It was a lenten year that went on and on and on.

But not many people understood. Grace had died nearly six months before Thanksgiving and people would ask us, "What are you doing this Thanksgiving?" And I would stare at them with my alien look thinking, "Honestly? Do you honestly think I have anything to be thankful for?"

I don't remember what I responded, but most likely it was a standard response, something mumbled in passing to get out of being asked any more questions. Darkness descended. Clouds hung low. And we sat around, our family of four, fully knowing it should be a family of five. Our extended families called, and we let the phone ring unanswered. Why would we want to listen to their empty words when our empty hearts were hard enough to listen to?

And so at this time of Thanksgiving, while indeed we have much to be thankful for, I remain mindful of those dark days, remembering, holding in my heart those families experiencing their days of firsts: Our first Thanksgiving without our child; our first Christmas coming near; our first New Year with absolutely nothing to feel hopeful about because no resolution will bring our child back.

And I want to tell them that over time, the clouds will lift, the darkness will rise for the light to appear. But I also want to tell them to hold on to those dark days because in those days their children are present. In those days, their sons and daughters remain very much alive in their hearts and minds. I want to tell them that with the grief comes the love, and neither remains without the other. I want to tell them that the ache does subside, the loneliness dissipates, the hole in the heart gets smaller. But none of it ever goes away.

And therein lies the beauty of our collective grief. For in the loneliness is the memory of Grace. In the dull aching that pulses in the recesses of our minds, is the ever so slight reminder that Grace matters. In the way in which our children smile or laugh, in the way in which they cry, there is Grace.

And so as the holidays appear, as the lights go up and the carolers sing, "Oh little town of Bethlehem," they also sing, "Angels we have heard on high," and in the promise of the birth is the promise that life begins again. Despite the painful, painful realization that indeed our children cannot be born kicking and screaming, they remain present in our minds, kicking and screaming, laughing and smiling.

For indeed, unto us, a child has been born.

And unto us, our children matter.

Statistics and how they become meaningless

Last week I had the privilege of spending the weekend with six different families with six different stories to tell. You can tell me everything I want to know about statistics and spin it in many different ways, but here are the statistics of six families. I know that these are the real statistics for them. The statistics of six:

One in three children dies shortly after birth.

Two of two infants die one day apart in two different hospitals though they shared the same mother and the same womb.

One in one child is stillborn.

One in three children dies of a fetal anomaly. (Who came up with that horrible term?)

Two of three children die of cancer, five years apart.

One in three children dies of unknown causes.

One of one father and husband dies of cancer.

The statistics of six. The grief of six mothers and five fathers. The grief of nine siblings left to make sense of the grief that they carry and that of their parents.

It is a large canvas upon which these stories are spun. But their stories carry meaning and the weight of their lives will not be forgotten and so I speak their names out loud and challenge you to do the same. Speak their names and hold their names so that the forgotten are remembered.

Isabelle

Aiden

Wyatt

Olivia

Grace

Michael

Nikki

Kerry

Dakota

Six families--nine deaths. It is a grief that is palpable and living. It is a grief with so much energy and movement that the power these six families have is remarkable.

These are people who understand the real meaning of living and what it means to watch someone die.

Six families and nine deaths. Each of them has given me the gift of insight and understanding. Each of them has taught me something about my own life.

And mostly, I want to thank them for being present, for being honest, for sharing with me a portion of their life and their days. And I want to thank them for their courage, their grace and their courage.

It is an honor and a privilege to have each of them in my life.

"The mention of my child's name may make me cry, but not mentioning my child's name can break my heart. "

Did you know ...

26,000 babies die each year in the United States before they have a chance to take a breath!

4.5 million children worldwide are stillborn each year!

Most stillborn children do not receive a birth certificate. Yet the parents are required to file a death certificate.

In up to 50% of stillbirths, no cause is ever found.

One baby is stillborn in the United States for every 115 babies born.

You can find information here: Still no More

or here: International Stillbirth Alliance

And you can take action here: MISSing Angels Bill

An amazing mother, an amazing wife, a wonderful friend

Once in a while, a person gets so caught up in their own lives and their own grief, that we forget, and god knows, we don't want to forget. But we do forget there are others out there with stories so profound and so humbling that it takes your breath away.

I have had the privilege and honor of knowing Mary Anne Ruddis for a very short amount of time. But we are fast becoming friends and sharing our work and sharing our writing and in the process, I am amazed at her grace, at her candor, but most of all by her wit, wisdom and love for life.

As so often happens in Spokane, where I live, my life crossed with Mary Anne's about five years ago when we were both presenting at a conference, but it wasn't until just last month, that we were able to really sit down, talk and share our stories. And now, we meet weekly as part of a writer's studio.

If you were walking down the street and you saw Mary Anne and you met her 20-year-old son and you chatted with them casually, you would not know the whole story. You might walk away thinking that Mary Anne is single; Mary Anne has one son; Mary Anne works for a nonprofit organization. But if you stuck around, if you stopped and listened and watched and heard, you could meet Mary Anne's daughter Nikki, who at 16 months old, was diagnosed with cancer and after surgery and aggressive chemotherapy, the cancer disappeared only to reappear again six years later in the form of leukemia resulting from her previous chemotherapy.

And if you peered closer, you would meet Mary Anne's husband, Kerry, who had the courage and grace to tell Mary Anne about his cancer over dinner one night when they were alone. During this time, Mary Anne and Kerry fought his cancer aggressively too. And during his treatment is when Nikki was diagnosed a second time.

Fifteen years ago, on Easter Sunday, Kerry died. And four months later, Nikki died.

There isn't one person who wouldn't agree that Mary Anne had had her lifetime's share of grief. There is no one who could deny that Mary Anne above all else deserved the "no more trauma for life" cards. Don't we all yearn for one of those. The card that says, "You are done. You have had enough trauma, enough grief in your life. And now you get to walk freely without fear or worry."

But that, as we know, is a fiction that doesn't exist.

And so just as Mary Anne and her two sons, Michael and Matthew, were piecing their lives back together, the absolute unthinkable happened. A teacher called Mary Ann in to say that her once very bright son, Michael, was struggling in school. After a brain tumor was found and treatment was attempted, Michael died at the age of 12.

And so, young Mary Ann, by the age of 42, when most of us are re-evaluating our careers and celebrating our children's milestones, had buried her 9 year old daughter, Nikki, her 35 year old husband, Kerry, and her 12 year old son Michael.

This would be the undoing of any person.

But Mary Anne has taken the unbeaten path, and instead of treading carefully, instead of losing hope, she has chosen to embrace life. And that is not to say that Mary Anne denied her grief. Certainly, there were days and there are days, that I am certain when Mary Anne questions and rages and wonders.

But on most days of any given year, you will find Mary Anne, Executive Director of Candlelighters of the Inland Northwest, providing support for families whose children are diagnosed with and dealing with cancer. You will find her counseling parents and offering hope and giving out 'hope bags' and most importantly offering her kindness and her grace and her belief in embracing life.

And so take a moment, visit their Web site, make a donation, say a prayer because somewhere out in the world, for the very first time, a family is hearing the words, "I'm sorry. You child has cancer."

La noche oscura del alma

There are times when your title says it all. And if not, then Robert Karen does a pretty damn good job of trying to sort things out for a person:

In "The Forgiving Self" Robert Karen says,

"Ideally, the therapeutic partnership offers something that cannot be found in a book: first, of course, the relationship itself, a relationship in which one is perhaps heard and understood as never before, that can access repressed and disowned parts of ourselves, that can get into the formative machinery and shed light on the forgotten gears and levers of our choices. But it also offers a relationship that may enable us to experience ourselves as cared about in a context where care has been wanting, where we can know our beauty and our ugliness, and where we can know the latter without obsessive self-recrimination but, rather, with a healthy remorse and a desire to grow. The therapeutic experience can--and should--engender a fresh perspective on what is possible for us in the realm of love and loss."

It is difficult in the middle of summer to have a dark night of the soul experience. It is better, I think, to do it in winter both literally and metaphorically. But sometimes that night will come even in the brightest of days. Sometimes that darkness comes in the midst of a sun-filled, huckleberry picking, waterslide waterpark, filled with kids kind of day. Sometimes you just can't stop that train from coming no matter how fast you try and run.

Do you ever feeling like you are running and running and still, you just can't escape that thing that is tugging inside your soul?

I wait and wander in the desert knowing that I'll find my way back stronger, better and with more empathy for the world that moves around and beyond me.

The many faces of grief

Grief comes in so many different shapes, sizes and colors.

Of late, I have had half a dozen people in my life die of a variety of reasons and causes. And these are people that perhaps have not been in my life for years, but at one point were significant or made an impression or simply were just always there as anchors in a life surrounded and enriched by so many others.

Take Bill. The stalwart German who I worked for a number of years back. Cleaned toilets in his tennis shop in high school. I was generally afraid of him most of the time, his gruffness, his solitude, but underneath all of that, I could see the hints of softness and graciousness. His mother, in her 80s, sat in the tennis shop, slipping me $5 and $10 bills in between scrubbing counters and sweeping floors. And Bill quietly (if not gruffly) went about his business. And then one day, I went off to college and returned and met him again, and we had coffee and he asked me if I'd read his book he'd written from the point of view of a dog. He'd never shown it to anyone but he heard I was a writer and thought I might have some advice for him. So we chatted and I read and we shared a connection over writing, over dogs, over things lost and remembered.

And now Bill may he rest in peace.

Take Etsa. Our Italian friend. Her husband employed my brother when he was a teenager. And over the years, as the younger sister, I tagged along to parties at their house. I tagged along to meals, grown and picked and sauteed at their house. The meals started with one course and ended in the seventh or eighth course. First the pasta and the sauce and the lamb and beef and bread and more pasta and fruit and the final course of salad when you just felt that you couldn't eat any more. And the homemade wine to go with each course. You left the table not sure if you were more full than you were tipsy or was it more tipsy than you were full.

And Etsa struggled with cancer and lost the battle but before she did, she made sure to can 170 quarts of tomato sauce so that Ben had something to eat when she was gone. How much more beautiful can love get than 170 quarts of homemade tomato sauce from tomatoes grown in your own garden.

Farewell, Etsa. Rest in peace.

Farrah Fawcett and Michael Jackson. Hardly two people that should appear in the pages of a grief blog that has to do with stillborn babies and grandmothers. But who hasn't thought of them in the last couple of weeks. And who, as a 40 something year old woman, hasn't remembered those high school years of trying to get the hair to flip just right, to have the same tan and to let the spaghetti string of her tee, fall just right over the shoulder and onto the arm. And who hasn't just once tried to moonwalk again in their kitchen in between stirring pots and pouring drinks. Who hasn't listened to Billy Jean on the radio in the last few days? And so in some small (or is it large) way, those two have shaped my life as well.

Aside from the poorly told jokes and the flippant comments about their lives, there is a kind of grief. A childhood lost and remembered. A high school love gone bad. A memory of what was and can never be again. For in those moments of carelessness and recklessness, there was the belief in angels solving crimes and music rescuing love.

Farewell to Farrah and Michael, linked perhaps by nothing more than sharing a day of memorialization and a life of tabloid jabs. Rest in peace.

As so the grief arrives in the most surprising ways. Grief comes in the memories of their faces, in the small shift of pages across the table as I turn to the next chapter. The grief comes in the memories of lamb that melts into my mouth; who knew that lamb could be so tender as to melt. Who knew that wine poured from a recycled and well-used bottle could taste that strong, that fresh, that full of ripeness. The grief comes in the passing of their lives and the memories of their stories as they shaped and turned and in some small way created the person that I've become.

And grief is forever linked to love, and in that love lies the reason for being and the reason for knowing that today, one more person who I've never met will touch my life and find a way to affect my soul in this surprising and unexpected journey that we call living.